BARCELONA – Spain’s Queen Letizia defended the need of full inclusive education for children with rare diseases and “the use of all the necessary tools to make it a reality,” at the opening act of the 2nd School Congress on Less Common Diseases held in Cosmocaixa.
The royal stressed Tuesday that “only with the commitment of us who form part of the educational community will the time arrive when no child will feel marginalized, lonely, unattended, rejected or misunderstood.”
For the queen, “it is our duty. And we all have to learn, train and educate ourselves to be better and that verbs such as welcome, integrate, normalize, facilitate, attend, adapt and improve materialize.”
Moments before the opening, Letizia was informed of educational projects talked about at the event, among them the “Solidarity Sandwich,” with which the El Carracillo school in Segovia has worked to help include Carla, a seven-year-old girl who suffers from lamellar ichthyosis, a condition that leaves her skin scaly and red, similar to the surface of a fish.
The Queen opened the congress accompanied by Spain’s Minister of Health, Alfonso Alonso, Catalonia’s Minister of Health, Boi Ruiz and the Spanish Government’s delegate in Catalonia, Llanos de Luna.
The congress was organized by the Spanish Federation of Rare Diseases (FEDER) and Oberta de Catalunya University (UOC) to encourage inclusive education for children suffering from these illnesses.